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Lived Experience Australia is involved in research projects to broaden the evidence base and knowledge of the mental health sector in Australia. This research is also an integral part of how we advocate for better services. We use our learnings from these studies to guide us in what is needed and how we can make things better. 

If you would like to participate in our research or be informed when we release new reports, you can join our mailing list to get our latest research information delivered straight to your in box.

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Unequally Unwell: Shorter life expectancies, reduced life opportunities

The data presented in this report provides an insight into the experience of many living with mental illness, their families, carers and supporters as they interact with services that provide physical and mental health care. This report presents data that indicates a consistent pattern of reduced life expectancy for a large section of the population: those who used Australian Government-funded mental health services.

Authors:

Roberts, R, Wong, A, Lawrence, D, Lawn, S, and Johnson, C (2024).

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Determining the future role of clinical practice guidelines: The experience of Australia and New Zealand

Contemporary guidance needs to be tailored to the requirements of the practitioners seeking it, to articulate the real-world needs and experiences of patients, and to be delivered in a contemporary format that is responsive to rapidly emerging evidence. The experience in Australia and New Zealand may have implications elsewhere for the development of CPGs and BPRs more broadly

Authors:

S Kisely , H Herrman, S Chamoli , D Hemachandra, S Lawn, L Bajurny, N Wright and G Mellsop

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Families’ moral distress when supporting military Veteran and public safety personnel mental health: Conceptual model

The objective of this study was to describe families’ experiences of supporting Veterans/PSP seeking help for mental health concerns and formulate a conceptual model to illustrate the impacts of these experiences on families.

Authors:

Sharon Lawn, Louise Roberts, Elaine Waddell, Wavne Rikkers, Ben Wadham, Tiffany Beks, David Lawrence, Pilar Rioseco, Tiffany Sharp, Galina Daraganova and Miranda Van Hooff

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Riske prevalence, readiness and confidence to change lifestyle risk factors among clients of community mental health services

People with mental health conditions have high rates of chronic physical diseases, partially attributable to
lifestyle risks factors. This study examined risk prevalence among community mental health service clients, their readiness and confidence to change, and associations with participant characteristics. Many participants were ready and confident to change risk factors. Gender influenced readiness to
change nutrition and physical activity confidence. Training to upskill mental health clinicians in provision of preventive care that builds confidence and readiness levels may aid in supporting positive behaviour change.

Authors:

Tegan Stettaford , Caitlin Fehily, Elizabeth Campbell, Daniel Barker, Christopher Oldmeadow, Emma McKeon, Sophie Love , Sharon Lawn, David Castle and Jennifer Bowman

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Shortcomings of services for those with severe and persistent mental health challenges

The opinions of service users and carers are crucial to identifying ways to innovate and implement system change. This study explores the views and experiences of service users and carers on the services they have used for their mental health challenges and their suggestions for service reform.

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Creating positive experiences using NOCC Outcome Measures

A study talking with those with mental ill-health undertaking NOCC Measures with their clinicians to determine what helps make these a positive experience.

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South Australian Carers Experience Survey Report

What Carers say about their Experience of South Australian Mental Health Services 2021 - Report on data from the Carer Experience Survey (CES) SA.

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The 'Missing Middle'
Lived Experience Perspectives

This research identifies why people slip through the gaps or do not receive the mental health care they need.

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Understanding the Experiences of Spouse Mental Health Carers

This research explores the unique role of caring for a spouse with severe mental illness.

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Borderline
Personality Disorder

This research explores information from public and private sectors on policies and treatment options for people with BPD and their carers.

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Exploring GP Views and Experiences of Providing Care to People with BPD

This research explores the challenges faced by General Practitioners in providing care to patients with BPD.

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Carer Guide Demonstration Project

This research explores the experiences of Ramsay Health Care in implementing the Practical Guide for Working with People with a Mental Illness.

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Communicating My Preferences: Advance Care Planning

This report is the analysis of research conducted by LEA with mental health
consumers and carers. It forms part of a larger project undertaken by Mental Health Australia for the Australian Digital Health Agency.

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Review of Physical and Mental Health Care in Australia

Research into whether those with lived experience of mental ill-health have their physical health considered by their practitioners. 

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What do Consumers and Carers need from Psychology services

This research investigates the consumer and carer experience of psychological services and finds out the barriers to support seeking.

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Telehealth Psychiatry Consultation Reports

These research reports provide a national collective voice of consumers’ and carers' experiences accessing telehealth psychiatry services

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Adult Mental Health Centre Survey Report
 

We conducted a survey with consumers and carers to get their perspectives to inform the 8 Adult Mental health Centres proposed for Australia.

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Borderline
Personality Disorder

This research explores experiences of family carers of people diagnosed with Borderline Personality Disorder.

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Collaboration in Care
with Family Carers

This research explores collaboration in care with family carers of patients admitted to the Jamie Larcombe Centre in South Australia.

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Understanding Loneliness and Mental Health

In collaboration with the RANZCP, this study and report is the true voice of lived experience sharing about loneliness, and what can be done to mitigate it.

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Preventative Care Trial Protocols in Community Mental Health

12 community mental health services in 3 LHDs in New South Wales, will be randomised to either an intervention group or a control group. 

Australian Mental Health Consumers’ Experiences of Service Engagement and Disengagement A
A published paper in the International Journal of Research and Public Health

 

This paper is based on our 'Missing Middle' Research.

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How are the NHMRC BPD guidelines faring in practice? A consumer perspective.

We asked BPD identified consumers to share their experiences of care under the NHRMC BPD guidelines, and compared it with data gathered in 2011.

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Peer Worker
Research Project

We completed a feasibility project exploring the establishment of a member based organisation for the peer workforce in Australia.

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Borderline
Personality Disorder

This research explores the experience of care by Australians with a diagnosis of Borderline Personality Disorder.

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Implementing Carer Partnership Standards

This research explores the current changes in carer engagement following implementation of the Practical Guide for Working with People with a Mental Illness.

Lived Experience Australia acknowledges the Traditional Owners of all the lands on which we undertake our advocacy.

We pay our respects to their Elders past, present and emerging.

We also recognise all those with lived experience of mental ill-health. We acknowledge that we can only provide leadership in systemic advocacy through valuing, respecting, and drawing upon their lived experience expertise and knowledge.

We acknowledge their enormous contribution to our work.

Lived Experience Australia National Secretariat
Phone 1300 620 042 or send us an enquiry
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This website is run by a member of
LGBTIQ+ Health Australia, click the logo to verify.

 

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